{"id":594,"date":"2019-02-17T22:03:37","date_gmt":"2019-02-17T22:03:37","guid":{"rendered":"https:\/\/www.cisztasfibrozis.hu\/?p=594"},"modified":"2020-04-23T08:43:43","modified_gmt":"2020-04-23T06:43:43","slug":"cf-nagyokos-tanuljunk-egymastol-is-2","status":"publish","type":"post","link":"https:\/\/www.cisztasfibrozis.hu\/index.php\/2019\/02\/17\/cf-nagyokos-tanuljunk-egymastol-is-2\/","title":{"rendered":"CF Nagyokos &#8211; 2019 \u00e1prilis 12-14"},"content":{"rendered":"\n<h3 class=\"wp-block-heading\">A CF Betegek Egyes\u00fclete szeretettel megh\u00edv minden kedves \u00e9rdekl\u0151d\u0151t a<br><strong><a href=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2019\/02\/CF-Nagyokos-plak\u00e1t-1.pdf\" class=\"rank-math-link\">CF Nagyokos \u2013 tanuljunk egym\u00e1st\u00f3l is!<\/a><\/strong><a href=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2019\/02\/CF-Nagyokos-plak\u00e1t-1.pdf\" class=\"rank-math-link\"> <\/a><\/h3>\n\n\n\n<p>megnevez\u00e9s\u0171, k\u00e9t napos, ismeretterjeszt\u0151 \u00e9s tapasztalat cser\u00e9re lehet\u0151s\u00e9get biztos\u00edt\u00f3 betegeduk\u00e1ci\u00f3s rendezv\u00e9nyre. A konferencia c\u00e9lja, hogy az orsz\u00e1g t\u00e1voli szegleteiben \u00e9l\u0151 CF-es betegek \u00e9s hozz\u00e1tartoz\u00f3k is, az id\u0151keret \u00e1ltal biztos\u00edtott legsz\u00e9lesebb t\u00e9mav\u00e1laszt\u00e9kot megtal\u00e1lva v\u00e1laszt kaphassanak az \u0151ket legink\u00e1bb \u00e9rdekl\u0151 k\u00e9rd\u00e9sekre szakemberekt\u0151l illetve sz\u00fcl\u0151 \u00e9s betegt\u00e1rsakt\u00f3l is.  <\/p>\n\n\n\n<p><strong>A k\u00e9t napos konferenci\u00e1n\nsz\u00e1m\u00edtunk:<\/strong><\/p>\n\n\n\n<div class=\"wp-block-image is-style-default\"><figure class=\"alignright size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"158\" src=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2018\/09\/CF-Nagyokos-300x158-1.jpg\" alt=\"CF Nagyokos\" class=\"wp-image-505\"\/><\/figure><\/div>\n\n\n\n<ul class=\"wp-block-list\"><li>fiatal kisgyermekes sz\u00fcl\u0151kre, akik csak most\nismerkednek a betegs\u00e9ggel<\/li><li>tapasztaltabbakra, akik seg\u00edten\u00e9nek megosztani a\nrendelkez\u00e9s\u00fckre \u00e1ll\u00f3 tud\u00e1st \u00e9s tapasztalatot<\/li><li>betegekre, akik t\u00e1j\u00e9koz\u00f3dn\u00e1nak a legfrissebb\nter\u00e1pi\u00e1s lehet\u0151s\u00e9gekr\u0151l<\/li><li>transzplant\u00e1ltakra illetve azokra, akik m\u00e9g csak\nel\u0151tte \u00e1llnak<br>\n<br>\n<\/li><\/ul>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Konferencia&nbsp;program:<\/strong><\/h2>\n\n\n\n<p><strong><span style=\"color: #ff0000;\">2019. \u00e1prilis 12, p\u00e9ntek:<\/span><\/strong><\/p>\n\n\n\n<p>17:00-t\u00f3l: \u00c9rkez\u00e9s, regisztr\u00e1ci\u00f3<br>18:00 &#8211; 19:00: Vacsora<br>20:00-t\u00f3l:&nbsp;<span style=\"font-weight: 400;\">Ismerked\u00e9si est, k\u00f6z\u00f6ss\u00e9gi program pszichol\u00f3gus seg\u00edts\u00e9g\u00e9vel<\/span><\/p>\n\n\n\n<p><strong><span style=\"color: #ff0000;\">2019. \u00e1prilis 13. szombat:<\/span><\/strong><\/p>\n\n\n\n<p><span style=\"color: #0000ff;\">09:00 &#8211; 09:10&nbsp; &nbsp; &nbsp;Megnyit\u00f3<\/span>&nbsp;<\/p>\n\n\n\n<p>09:10 &#8211; 09:25&nbsp; &nbsp; &nbsp;CF Alapismeretek (Dr. Laki Istv\u00e1n, Dr. Gy\u0171r\u0171s \u00c9va)<br>09:25 &#8211; 09:40&nbsp; &nbsp; &nbsp;K\u00e9rd\u00e9sek \u00e9s v\u00e1laszok az elhangzotakkal kapcsolatban<\/p>\n\n\n\n<p>09:40 &#8211; 09:55&nbsp; &nbsp; &nbsp;<span style=\"font-weight: 400;\">Genetikai vizsg\u00e1latok jelent\u0151s\u00e9ge CF-ben (Dr. Balogh Istv\u00e1n)&nbsp;<br><\/span><span style=\"font-weight: 400;\">&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp;a diagn\u00f3zist\u00f3l a kezel\u00e9sig<br>09:55 &#8211; 10:10&nbsp; &nbsp; &nbsp;K\u00e9rd\u00e9sek \u00e9s v\u00e1laszok az elhangzottakkal kapcsolatban<\/span><\/p>\n\n\n\n<p>10:10 &#8211; 10:40&nbsp; &nbsp; &nbsp;Besz\u00e9lgess\u00fcnk a diabetesr\u0151l&nbsp; (Dr. Hal\u00e1sz Adrien)<\/p>\n\n\n\n<p><span style=\"color: #0000ff;\">10:40 &#8211; 11:00&nbsp; &nbsp; &nbsp;K\u00e1v\u00e9sz\u00fcnet<\/span><\/p>\n\n\n\n<p><span style=\"color: #000000;\">11:00 &#8211; 11:15&nbsp; &nbsp; &nbsp;Kil\u00f3k \u00e9s kal\u00f3ri\u00e1k: t\u00e1pl\u00e1lkoz\u00e1si ismeretek CF-ben&nbsp; &nbsp;(T\u00f3th Krisztina)<br>11:15 &#8211; 11:30&nbsp; &nbsp; &nbsp;<span style=\"font-weight: 400;\">K\u00e9rd\u00e9sek \u00e9s v\u00e1laszok az elhangzottakkal kapcsolatban<\/span><\/span><\/p>\n\n\n\n<p>11:30 &#8211; 11:45&nbsp; &nbsp; &nbsp;Mit tehet\u00fcnk a fert\u0151z\u00e9sek megel\u0151z\u00e9s\u00e9\u00e9rt&nbsp;&nbsp;(Dr.&nbsp;Lehotsky \u00c1kos)<br>&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp;otthon \u00e9s k\u00f3rh\u00e1zi tart\u00f3zkod\u00e1s alatt&nbsp;<br>11:45 &#8211; 12:00&nbsp; &nbsp; &nbsp;<span style=\"font-weight: 400;\">K\u00e9rd\u00e9sek \u00e9s v\u00e1laszok az elhangzottakkal kapcsolatban<\/span><\/p>\n\n\n\n<p>12:00 &#8211; 12:15&nbsp; &nbsp; &nbsp;T\u00fcd\u0151transzplant\u00e1ci\u00f3 a seb\u00e9sz szemsz\u00f6g\u00e9b\u0151l&nbsp; (Dr. Gieszer Bal\u00e1zs)<br>12:15 &#8211; 12:30&nbsp; &nbsp; &nbsp;<span style=\"font-weight: 400;\">K\u00e9rd\u00e9sek \u00e9s v\u00e1laszok az elhangzottakkal kapcsolatban<\/span><\/p>\n\n\n\n<p>12:30 &#8211; 12:40&nbsp; &nbsp; &nbsp;<span data-sheets-value=\"{&quot;1&quot;:2,&quot;2&quot;:&quot;Fizioter\u00e1pia piciknek \u00e9s kicsiknek&quot;}\" data-sheets-userformat=\"{&quot;2&quot;:15235,&quot;3&quot;:{&quot;1&quot;:0},&quot;4&quot;:[null,2,-1],&quot;10&quot;:0,&quot;11&quot;:0,&quot;12&quot;:0,&quot;14&quot;:[null,2,0],&quot;15&quot;:&quot;Calibri, sans-serif&quot;,&quot;16&quot;:11}\">Fizioter\u00e1pia piciknek \u00e9s kicsiknek&nbsp; (Dr. Borka P\u00e9ter)<br>12:40 &#8211; 12:50&nbsp; &nbsp; &nbsp;Mi is az a fizioter\u00e1pia? Kinek, mikor mit?&nbsp; &nbsp;(Petr\u00f3 Judit)<br>12:50 &#8211; 13:00&nbsp; &nbsp; &nbsp;K\u00e9rd\u00e9sek \u00e9s v\u00e1laszok az elhangzottakkal kapcsolatban<\/span><\/p>\n\n\n\n<p><span style=\"color: #0000ff;\">13:00 &#8211; 14:00&nbsp; &nbsp; Eb\u00e9d<\/span><\/p>\n\n\n\n<p>14:00 &#8211; 14:30&nbsp; &nbsp; &nbsp;Interakt\u00edv el\u0151ad\u00e1s a sz\u00fcl\u0151v\u00e9 v\u00e1l\u00e1sr\u00f3l (Dr. Csisz\u00e9r Eszter)<\/p>\n\n\n\n<p>14:30 &#8211; 14:45&nbsp; &nbsp; &nbsp;Az \u00e9let sava borsa&nbsp; &nbsp;(Hodov\u00e1n Zs\u00f3fia)&nbsp; <br>&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp;Pszihol\u00f3giai kih\u00edv\u00e1sok a diagn\u00f3zis el\u0151tt \u00e9s ut\u00e1n<br>14:45 &#8211; 15:00&nbsp; &nbsp; &nbsp;K\u00e9rd\u00e9sek \u00e9s v\u00e1laszok az elhangzottakkal kapcsolatban<\/p>\n\n\n\n<p>15:00 &#8211; 15:15&nbsp; &nbsp; &nbsp;A k\u00f6z\u00f6ss\u00e9g \u00e9s annak ereje&nbsp; (Marsal G\u00e9za)<br>15:15 &#8211; 15:30&nbsp; &nbsp; &nbsp;K\u00e9rd\u00e9sek \u00e9s v\u00e1laszok az elhangzottakkal kapcsolatban<\/p>\n\n\n\n<p>15:30 &#8211; 15:40&nbsp; &nbsp; &nbsp;Orkambi: pro&nbsp; &nbsp;(M\u00e9sz\u00e1ros Csilla, M\u00e9sz\u00e1ros Katinka)<br>15:40 &#8211; 15:50&nbsp; &nbsp; &nbsp;Orkambi: kontra (Dr. Laki Istv\u00e1n)<br>15:50 &#8211; 16:00&nbsp; &nbsp; &nbsp;K\u00e9rd\u00e9sek \u00e9s v\u00e1laszok az elhangzottakkal kapcsolatban<\/p>\n\n\n\n<p><span style=\"color: #0000ff;\">18:00 &#8211; 19:00&nbsp; &nbsp; Vacsora<\/span><\/p>\n\n\n\n<p>20:00-t\u00f3l k\u00f6z\u00f6ss\u00e9gi program, pszihol\u00f3gus vezet\u00e9s\u00e9vel<\/p>\n\n\n\n<p><strong><span style=\"color: #ff0000;\">2019. \u00e1prilis 14. vas\u00e1rnap:<\/span><\/strong><\/p>\n\n\n\n<p>10:00 &#8211; 12:00&nbsp; &nbsp;&nbsp;<b>Fizioter\u00e1pia<\/b><span style=\"font-weight: 400;\"> workshop&nbsp; (Petr\u00f3 Judit, Dr. Borka P\u00e9ter)<br><\/span><span style=\"font-weight: 400;\">&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; besz\u00e9lget\u00e9sek az el\u0151ad\u00e1sok k\u00f6zben felmer\u00fclt k\u00e9rd\u00e9sekr\u0151l<\/span><\/p>\n\n\n\n<p>10:00 &#8211; 12:00&nbsp; &nbsp; <span style=\"font-weight: 400;\"><b>T\u00e1pl\u00e1lkoz\u00e1s, dietetika workshop<\/b>&nbsp; (T\u00f3th Krisztina)<br>&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; besz\u00e9lget\u00e9sek az el\u0151ad\u00e1sok k\u00f6zben felmer\u00fclt k\u00e9rd\u00e9sekr\u0151l<\/span><\/p>\n\n\n\n<p>10:00 &#8211; 12:00&nbsp; &nbsp; <b>Pszichol\u00f3gia workshop&nbsp;&nbsp;<\/b>(Hodov\u00e1n Zs\u00f3fia)<br>&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp; besz\u00e9lget\u00e9sek az el\u0151ad\u00e1sok k\u00f6zben felmer\u00fclt k\u00e9rd\u00e9sekr\u0151l<\/p>\n\n\n\n<p><span style=\"color: #000000;\"><span data-sheets-value=\"{&quot;1&quot;:2,&quot;2&quot;:&quot;Fizioter\u00e1pia piciknek \u00e9s kicsiknek&quot;}\" data-sheets-userformat=\"{&quot;2&quot;:15235,&quot;3&quot;:{&quot;1&quot;:0},&quot;4&quot;:[null,2,-1],&quot;10&quot;:0,&quot;11&quot;:0,&quot;12&quot;:0,&quot;14&quot;:[null,2,0],&quot;15&quot;:&quot;Calibri, sans-serif&quot;,&quot;16&quot;:11}\"><span style=\"color: #0000ff;\">12:00 &#8211; 13:00&nbsp; &nbsp; Eb\u00e9d, rendezv\u00e9ny z\u00e1r\u00e1sa<\/span><\/span><\/span><\/p>\n\n\n\n<p><strong>A konferencia id\u0151pontja<\/strong>: 2019.04.12 \u2013 14<br>\n(p\u00e9ntek este vacsora, szombat reggeli-eb\u00e9d-vacsora, vas\u00e1rnap reggeli)<br>\n<br>\n<strong>Helysz\u00edne:<\/strong> VVSI Sport Hotel &#8211; 2484\nG\u00e1rdony, T\u00f3part u. 17 , <a href=\"http:\/\/www.vvsisporthotel.hu\/\" target=\"_blank\" rel=\"noopener\">http:\/\/www.vvsisporthotel.hu\/<\/a><\/p>\n\n\n\n<p>A sz\u00e1ll\u00e1s \u00e9s \u00e9tkez\u00e9s lehet\u0151s\u00e9g\u00e9t az\nEgyes\u00fclet t\u00e9r\u00edt\u00e9smentesen biztos\u00edtja, a r\u00e9szv\u00e9tel ingyenes!<\/p>\n\n\n\n<p><strong>Jelentkez\u00e9s: <\/strong>jelentkezni a <a href=\"mailto:cisztasfibrozis@gmail.com\">cisztasfibrozis@gmail.com<\/a> email c\u00edmre k\u00fcld\u00f6tt lev\u00e9lben lehets\u00e9ges, amelyben az al\u00e1bbi adatokat k\u00e9rj\u00fck megjel\u00f6lni:<br><br><em>!!! FIGYELEM !!! A NAGY \u00c9RDEKL\u0150D\u00c9S MIATT A SZ\u00c1LL\u00c1ST M\u00c1R NEM TUDUNK BIZTOS\u00cdTANI T\u00d6BB JELENTKEZ\u0150 SZ\u00c1M\u00c1RA, A KONFERENCI\u00c1N VAL\u00d3 R\u00c9SZV\u00c9TELHEZ VISZONT TOV\u00c1BBRA IS V\u00c1RJUK A R\u00c9SZTVEV\u0150K JELENTKEZ\u00c9S\u00c9T EMAILES REGISZTR\u00c1CI\u00d3VAL!<\/em><\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>Jelentkez\u0151(k) neve, \u00e9letkora valamint hogy beteg vagy hozz\u00e1tartoz\u00f3<\/li><li>\u00c9rkez\u00e9s kb. ideje<\/li><li>Jelentkez\u0151k l\u00e9tsz\u00e1ma<\/li><li>Sz\u00e1ll\u00e1st h\u00e1ny \u00e9jszak\u00e1ra ig\u00e9nyel<\/li><li>Speci\u00e1lis di\u00e9ta vagy egy\u00e9b ig\u00e9ny megjel\u00f6l\u00e9se<\/li><\/ul>\n\n\n\n<p><strong>Jelentkez\u00e9si hat\u00e1rid\u0151<\/strong>: 2019. \u00e1prilis 01.<\/p>\n\n\n\n<p>A\nr\u00e9szletes programmal a k\u00f6vetkez\u0151 hetekben jelentkez\u00fcnk, szeretettel v\u00e1runk\nminden \u00e9rdekl\u0151d\u0151t a rendezv\u00e9nyen!<\/p>\n\n\n\n<figure class=\"wp-block-embed-wordpress wp-block-embed is-type-wp-embed is-provider-cisztas-fibrozis-betegek-egyesulete\"><div class=\"wp-block-embed__wrapper\">\n<blockquote class=\"wp-embedded-content\" data-secret=\"Eble4EZ5Dj\"><a href=\"https:\/\/www.cisztasfibrozis.hu\/index.php\/2018\/09\/09\/cf-nagyokos-tanuljunk-egymastol-is\/\">CF Nagyokos \u2013 tanuljunk egym\u00e1st\u00f3l is!<\/a><\/blockquote><iframe loading=\"lazy\" class=\"wp-embedded-content\" sandbox=\"allow-scripts\" security=\"restricted\" style=\"position: absolute; visibility: hidden;\" title=\"&#8220;CF Nagyokos \u2013 tanuljunk egym\u00e1st\u00f3l is!&#8221; &#8212; Ciszt\u00e1s Fibr\u00f3zis Betegek Egyes\u00fclete\" src=\"https:\/\/www.cisztasfibrozis.hu\/index.php\/2018\/09\/09\/cf-nagyokos-tanuljunk-egymastol-is\/embed\/#?secret=pGB1Z7KSqV#?secret=Eble4EZ5Dj\" data-secret=\"Eble4EZ5Dj\" width=\"500\" height=\"282\" frameborder=\"0\" marginwidth=\"0\" marginheight=\"0\" scrolling=\"no\"><\/iframe>\n<\/div><\/figure>\n\n\n\n<p class=\"has-background has-very-light-gray-background-color\"><a href=\"https:\/\/www.cisztasfibrozis.hu\">Vissza a f\u0151oldalra<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>A CF Betegek Egyes\u00fclete szeretettel megh\u00edv minden kedves \u00e9rdekl\u0151d\u0151t aCF Nagyokos \u2013 tanuljunk egym\u00e1st\u00f3l is! megnevez\u00e9s\u0171, k\u00e9t napos, ismeretterjeszt\u0151 \u00e9s tapasztalat cser\u00e9re lehet\u0151s\u00e9get biztos\u00edt\u00f3 betegeduk\u00e1ci\u00f3s&#8230;<\/p>\n","protected":false},"author":1,"featured_media":505,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4,2],"tags":[115,84,116],"class_list":["post-594","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-esemenyek","category-news","tag-gardony","tag-nagyokos","tag-rendezveny","entry","double"],"_links":{"self":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/594","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/comments?post=594"}],"version-history":[{"count":12,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/594\/revisions"}],"predecessor-version":[{"id":2057,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/594\/revisions\/2057"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media\/505"}],"wp:attachment":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media?parent=594"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/categories?post=594"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/tags?post=594"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}