{"id":2737,"date":"2023-08-22T14:42:19","date_gmt":"2023-08-22T12:42:19","guid":{"rendered":"https:\/\/www.cisztasfibrozis.hu\/?p=2737"},"modified":"2023-09-02T16:47:14","modified_gmt":"2023-09-02T14:47:14","slug":"nyarzaro-cf-nap-2023","status":"publish","type":"post","link":"https:\/\/www.cisztasfibrozis.hu\/index.php\/2023\/08\/22\/nyarzaro-cf-nap-2023\/","title":{"rendered":"Ny\u00e1rz\u00e1r\u00f3 CF Nap 2023. szeptember 9"},"content":{"rendered":"\n<p>A CF Betegek Egyes\u00fclete szeretettel megh\u00edvja minden bar\u00e1tunkat \u2013 betegeket \u00e9s hozz\u00e1tartoz\u00f3kat valamint minden \u00e9rdekl\u0151d\u0151t egyar\u00e1nt \u2013 a szeptember 9-\u00e9n, a Nemzetk\u00f6zi Ciszt\u00e1s Fibr\u00f3zis Nap alkalm\u00e1b\u00f3l tartott idei&nbsp;<strong>ny\u00e1rz\u00e1r\u00f3 CF napunkra<\/strong>, melynek id\u0151pontja:&nbsp;<strong>2023 szeptember 9, 10:00 \u00f3ra, helysz\u00edne pedig az&nbsp;<a href=\"http:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2019\/08\/K%C3%A9pkiv%C3%A1g%C3%A1s.jpg\">Orsz\u00e1gos Kor\u00e1nyi Int\u00e9zet CF r\u00e9szleg\u00e9nek kertje<\/a><\/strong>&nbsp;a budakeszi hegyekben.<\/p>\n\n\n\n<p>Id\u00e9n is v\u00e1ltozatos programmal b\u00facs\u00fazunk a ny\u00e1ron, megh\u00edvott vend\u00e9geinkkel besz\u00e9lget\u00fcnk az al\u00e1bbi t\u00e9m\u00e1kr\u00f3l:<\/p>\n\n\n\n<p><em>10:15-10:35<\/em> &#8211; <strong>Dr. Bogos Krisztina<\/strong> (OKPI) &#8211; A Kor\u00e1nyi Int\u00e9zet \u00e9s a CF <br><em>10:35-10:55<\/em> &#8211; <strong>Dr. Hal\u00e1sz Adrien<\/strong> (OKPI) &#8211; A j\u00f6v\u0151 ter\u00e1pi\u00e1s lehet\u0151s\u00e9geir\u0151l <br><em>11:00-11:20<\/em> &#8211; <strong>Dr. G\u00e1cs \u00c9va<\/strong> (HOGYI) &#8211; CFTR modul\u00e1tor ter\u00e1pi\u00e1s tapasztalatok gyermekekn\u00e9l <br><em>11:20-11:40<\/em> &#8211; <strong>Dr. \u00d6rl\u0151s Zolt\u00e1n<\/strong> (OKPI)&nbsp;&#8211; CFTR modul\u00e1tor ter\u00e1pi\u00e1s tapasztalatok feln\u0151ttekn\u00e9l <br><em>11:40-12:00<\/em> &#8211; <strong>Dr. Kincs Judit<\/strong> (SE Gyermekklinika) &#8211; \u00dajsz\u00fcl\u00f6ttkori sz\u0171r\u00e9s tapasztalatai Magyarorsz\u00e1gon <\/p>\n\n\n\n<p><strong><em>12:00 &#8211; 13:00 EB\u00c9D &#8211; Bogr\u00e1csoz\u00e1s, k\u00f6tetlen besz\u00e9lget\u00e9s<\/em><\/strong><br><br><em>13:00-13:20<\/em> &#8211; <strong>T\u00f3th Krisztina<\/strong> (OKPI) T\u00e1pl\u00e1lkoz\u00e1s a modul\u00e1tor ter\u00e1pi\u00e1k \u00faj lehet\u0151s\u00e9geinek f\u00e9ny\u00e9ben <br><em>13:25-13:45<\/em> &#8211; <strong>Luk\u00e1cs Adrienn<\/strong> (HOGYI) Mozg\u00e1s, sport a modul\u00e1tor ter\u00e1pi\u00e1k \u00faj lehet\u0151s\u00e9geinek f\u00e9ny\u00e9ben<\/p>\n\n\n\n<p>Szeretettel l\u00e1tunk mindenkit, c\u00e9lunk, hogy egy j\u00f3 hangulat\u00fa \u00e9s m\u00e9gis informat\u00edv rendezv\u00e9nyen besz\u00e9lgess\u00fcnk aktu\u00e1lis t\u00e9m\u00e1kr\u00f3l betegekkel, szakemberekkel \u00e9s hozz\u00e1tartoz\u00f3ikkal valamint term\u00e9szetesen hogy remek eb\u00e9d mellett a ny\u00e1rt\u00f3l is elb\u00facs\u00fazzunk!<\/p>\n\n\n\n<p>T\u00e1mogat\u00f3ink:<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"993\" height=\"416\" src=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/09\/tamogatoink.jpeg\" alt=\"\" class=\"wp-image-2746\" srcset=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/09\/tamogatoink.jpeg 993w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/09\/tamogatoink-300x126.jpeg 300w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/09\/tamogatoink-768x322.jpeg 768w\" sizes=\"auto, (max-width: 993px) 100vw, 993px\" \/><\/figure><\/div>\n\n\n<figure class=\"wp-block-image size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"636\" height=\"900\" src=\"http:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/09\/CF_NAP_2023.jpg\" alt=\"\" class=\"wp-image-2748\" srcset=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/09\/CF_NAP_2023.jpg 636w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/09\/CF_NAP_2023-212x300.jpg 212w\" sizes=\"auto, (max-width: 636px) 100vw, 636px\" \/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>A CF Betegek Egyes\u00fclete szeretettel megh\u00edvja minden bar\u00e1tunkat \u2013 betegeket \u00e9s hozz\u00e1tartoz\u00f3kat valamint minden \u00e9rdekl\u0151d\u0151t egyar\u00e1nt \u2013 a szeptember 9-\u00e9n, a Nemzetk\u00f6zi Ciszt\u00e1s Fibr\u00f3zis Nap&#8230;<\/p>\n","protected":false},"author":1,"featured_media":2748,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-2737","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized","entry","double"],"_links":{"self":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2737","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/comments?post=2737"}],"version-history":[{"count":6,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2737\/revisions"}],"predecessor-version":[{"id":2749,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2737\/revisions\/2749"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media\/2748"}],"wp:attachment":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media?parent=2737"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/categories?post=2737"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/tags?post=2737"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}