{"id":2731,"date":"2023-06-14T20:56:39","date_gmt":"2023-06-14T18:56:39","guid":{"rendered":"https:\/\/www.cisztasfibrozis.hu\/?p=2731"},"modified":"2023-06-14T20:56:40","modified_gmt":"2023-06-14T18:56:40","slug":"ecfs-betegregiszter-eves-jelentes-2021","status":"publish","type":"post","link":"https:\/\/www.cisztasfibrozis.hu\/index.php\/2023\/06\/14\/ecfs-betegregiszter-eves-jelentes-2021\/","title":{"rendered":"ECFS Betegregiszter \u00e9ves jelent\u00e9s 2021"},"content":{"rendered":"\n<p>Az <a href=\"https:\/\/www.ecfs.eu\/\" target=\"_blank\" rel=\"noreferrer noopener\">Eur\u00f3pai Ciszt\u00e1s Fibr\u00f3zis T\u00e1rsas\u00e1g<\/a> (ECFS) a h\u00e9ten publik\u00e1lta az eur\u00f3pai CF betegek adatait \u00e9s r\u00e9szletes elemz\u00e9seket tartalmaz\u00f3 \u00e9ves jelent\u00e9s\u00e9t a 2021-es \u00e9vre.<br><br>A jelent\u00e9s k\u00e9t r\u00e9szb\u0151l \u00e1ll, a tudom\u00e1nyos r\u00e9szletess\u00e9g\u0171 \u00e9s m\u00e9ly elemz\u00e9seket tartalmaz\u00f3 180 oldalas  dokumentum pdf form\u00e1tumban<a href=\"https:\/\/www.ecfs.eu\/sites\/default\/files\/Annual%20Report_2021_09Jun2023.pdf\" target=\"_blank\" rel=\"noreferrer noopener\"> el\u00e9rhet\u0151 a t\u00e1rsas\u00e1g honlapj\u00e1r\u00f3l<\/a>.<br>Az egyszer\u0171s\u00edtett \u00e9s infografik\u00e1kkal illusztr\u00e1lt &#8220;At a glance&#8221; jelent\u00e9s szint\u00e9n el\u00e9rhet\u0151 az ECFS siter\u00f3l az az <a href=\"https:\/\/www.ecfs.eu\/sites\/default\/files\/At-a-Glance%20report%202021_ECFSPR_09Jun2023.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">al\u00e1bbi link<\/a> seg\u00edts\u00e9g\u00e9vel. Ez ut\u00f3bbit els\u0151sorban betegeknek, hozz\u00e1tartoz\u00f3knak illetve a t\u00e9m\u00e1ban kev\u00e9sb j\u00e1rtas \u00e9rdekl\u0151d\u0151knek sz\u00e1nj\u00e1k.<\/p>\n\n\n\n<p>Az interakt\u00edv adatbemutat\u00e1s kedvel\u0151inek egy <a href=\"https:\/\/www.ecfs.eu\/ecfspr\" target=\"_blank\" rel=\"noreferrer noopener\">online t\u00e9rk\u00e9p<\/a> is el\u00e9rhet\u0151 a kiv\u00e1lasztott orsz\u00e1g r\u00e9szletes adataival!<br><br>Ahogy a kor\u00e1bbi \u00e9vekben is, az adatgy\u0171jt\u00e9sben \u00e9s szolg\u00e1ltat\u00e1sban r\u00e9szt vett haz\u00e1nk \u00f6sszes CF ell\u00e1t\u00f3helye az <a href=\"https:\/\/www.koranyi.hu\/\" target=\"_blank\" rel=\"noreferrer noopener\">Orsz\u00e1gos Kor\u00e1nyi Pulmonol\u00f3giai Int\u00e9zet<\/a> \u00e9s a <a href=\"http:\/\/heimpalkorhaz.hu\/\" target=\"_blank\" rel=\"noreferrer noopener\">Heim P\u00e1l Gyermekgy\u00f3gy\u00e1szati Int\u00e9zet <\/a>vezet\u00e9s\u00e9vel. A munka koordin\u00e1ci\u00f3j\u00e1t Egyes\u00fclet\u00fcnk v\u00e9gezte a 2021-es adatgy\u0171jt\u00e9s tekintet\u00e9ben is.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"716\" height=\"1024\" src=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/06\/image-716x1024.png\" alt=\"\" class=\"wp-image-2732\" srcset=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/06\/image-716x1024.png 716w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/06\/image-210x300.png 210w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/06\/image-768x1098.png 768w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2023\/06\/image.png 811w\" sizes=\"auto, (max-width: 716px) 100vw, 716px\" \/><\/figure>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Az Eur\u00f3pai Ciszt\u00e1s Fibr\u00f3zis T\u00e1rsas\u00e1g (ECFS) a h\u00e9ten publik\u00e1lta az eur\u00f3pai CF betegek adatait \u00e9s r\u00e9szletes elemz\u00e9seket tartalmaz\u00f3 \u00e9ves jelent\u00e9s\u00e9t a 2021-es \u00e9vre. A jelent\u00e9s&#8230;<\/p>\n","protected":false},"author":1,"featured_media":2734,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[],"class_list":["post-2731","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","entry","double"],"_links":{"self":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2731","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/comments?post=2731"}],"version-history":[{"count":1,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2731\/revisions"}],"predecessor-version":[{"id":2733,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2731\/revisions\/2733"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media\/2734"}],"wp:attachment":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media?parent=2731"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/categories?post=2731"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/tags?post=2731"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}