{"id":2616,"date":"2022-08-18T21:33:06","date_gmt":"2022-08-18T19:33:06","guid":{"rendered":"https:\/\/www.cisztasfibrozis.hu\/?p=2616"},"modified":"2022-09-01T12:30:57","modified_gmt":"2022-09-01T10:30:57","slug":"cfnap2022","status":"publish","type":"post","link":"https:\/\/www.cisztasfibrozis.hu\/index.php\/2022\/08\/18\/cfnap2022\/","title":{"rendered":"Ny\u00e1rz\u00e1r\u00f3 CF Nap \u2013 2022 szeptember 10"},"content":{"rendered":"\n<p><strong>Kedves Bar\u00e1taink!<\/strong><\/p>\n\n\n\n<h4 class=\"wp-block-heading\">A CF Betegek Egyes\u00fclete szeretettel megh\u00edvja minden bar\u00e1tunkat \u2013 betegeket \u00e9s hozz\u00e1tartoz\u00f3kat valamint minden \u00e9rdekl\u0151d\u0151t egyar\u00e1nt \u2013 a szeptember 10-\u00e9n, a  Nemzetk\u00f6zi Ciszt\u00e1s Fibr\u00f3zis Nap alkalm\u00e1b\u00f3l tartott az idei&nbsp;<strong>ny\u00e1rz\u00e1r\u00f3 CF napunkra<\/strong>, melynek id\u0151pontja:&nbsp;<strong>2022 szeptember 10 helysz\u00edne pedig az&nbsp;<a href=\"http:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2019\/08\/K%C3%A9pkiv%C3%A1g%C3%A1s.jpg\">Orsz\u00e1gos Kor\u00e1nyi Int\u00e9zet CF r\u00e9szleg\u00e9nek kertje<\/a><\/strong>&nbsp;a budakeszi hegyekben.<br>Hagyom\u00e1nyos rendezv\u00e9ny\u00fcnk sajnos az ut\u00f3bbi k\u00e9t \u00e9v k\u00f3rh\u00e1zi szigor\u00edt\u00e1sai miatt elmaradt, de id\u00e9n \u00fajra megrendez\u00e9sre ker\u00fcl, Egyes\u00fclet\u00fcnk \u00e9s kedves vend\u00e9geink r\u00e9szv\u00e9tel\u00fckkel is hozz\u00e1j\u00e1rulhatnak ehhez a sz\u00e9les \u00f6sszefog\u00e1st ig\u00e9nyl\u0151 esem\u00e9nyl\u00e1nchoz.<\/h4>\n\n\n\n<p>Nagylelk\u0171 seg\u00edt\u0151ink seg\u00edts\u00e9g\u00e9vel a r\u00e9sztvev\u0151knek a szok\u00e1sos finom \u00e9s tartalmas bogr\u00e1csoz\u00e1s mell\u00e9 a napjainkban mindenkit legink\u00e1bb l\u00e1zban tart\u00f3 <a href=\"https:\/\/www.ema.europa.eu\/en\/documents\/overview\/kaftrio-epar-medicine-overview_hu.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Kaftrio<\/a> illetve a <a href=\"https:\/\/www.cisztasfibrozis.hu\/index.php\/2021\/02\/18\/elso-beteg-cftr-orkambi\/\" target=\"_blank\" rel=\"noreferrer noopener\">CFTR modul\u00e1torok<\/a> t\u00e9mak\u00f6r\u00e9t szeretn\u00e9nk \u00e1tr\u00e1gni illetve, amelyet a helysz\u00ednen alkalmunk lesz meghallgatni el\u0151ad\u00f3inkt\u00f3l a szok\u00e1sos interakt\u00edv form\u00e1ban, illetve term\u00e9szetesen k\u00f6z\u00f6sen megbesz\u00e9lni a hallottakat illetve k\u00e9rdezni is a r\u00e9sztvev\u0151kt\u0151l.<\/p>\n\n\n\n<p>Szeretettel l\u00e1tunk teh\u00e1t mindenkit, c\u00e9lunk, hogy egy j\u00f3 hangulat\u00fa \u00e9s m\u00e9gis informat\u00edv rendezv\u00e9nyen besz\u00e9lgess\u00fcnk aktu\u00e1lis t\u00e9m\u00e1kr\u00f3l betegekkel, szakemberekkel \u00e9s hozz\u00e1tartoz\u00f3ikkal valamint term\u00e9szetesen hogy remek eb\u00e9d mellett a ny\u00e1rt\u00f3l is elb\u00facs\u00fazzunk!<\/p>\n\n\n\n<p>\u00dcdv\u00f6zlettel<\/p>\n\n\n\n<p>CFBE<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"http:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2022\/09\/plaka\u0301t_3-1024x576.png\" alt=\"\" class=\"wp-image-2629\" srcset=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2022\/09\/plaka\u0301t_3-1024x576.png 1024w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2022\/09\/plaka\u0301t_3-300x169.png 300w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2022\/09\/plaka\u0301t_3-768x432.png 768w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2022\/09\/plaka\u0301t_3.png 1125w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>Kedves Bar\u00e1taink! A CF Betegek Egyes\u00fclete szeretettel megh\u00edvja minden bar\u00e1tunkat \u2013 betegeket \u00e9s hozz\u00e1tartoz\u00f3kat valamint minden \u00e9rdekl\u0151d\u0151t egyar\u00e1nt \u2013 a szeptember 10-\u00e9n, a Nemzetk\u00f6zi Ciszt\u00e1s&#8230;<\/p>\n","protected":false},"author":1,"featured_media":2629,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4,2,1],"tags":[],"class_list":["post-2616","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-esemenyek","category-news","category-uncategorized","entry","double"],"_links":{"self":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2616","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/comments?post=2616"}],"version-history":[{"count":5,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2616\/revisions"}],"predecessor-version":[{"id":2630,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2616\/revisions\/2630"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media\/2629"}],"wp:attachment":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media?parent=2616"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/categories?post=2616"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/tags?post=2616"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}