{"id":2609,"date":"2022-07-03T23:24:21","date_gmt":"2022-07-03T21:24:21","guid":{"rendered":"https:\/\/www.cisztasfibrozis.hu\/?p=2609"},"modified":"2022-07-03T23:26:34","modified_gmt":"2022-07-03T21:26:34","slug":"ecfs-patients-registry-2020","status":"publish","type":"post","link":"https:\/\/www.cisztasfibrozis.hu\/index.php\/2022\/07\/03\/ecfs-patients-registry-2020\/","title":{"rendered":"ECFS Patients Registry 2020"},"content":{"rendered":"\n<p>Az Eur\u00f3pai Ciszt\u00e1s Fibr\u00f3zis T\u00e1rsas\u00e1g (ECFS) \u00e1ltal gy\u0171jt\u00f6tt \u00e9s karbantartott \u00f6sszeur\u00f3pai cf betegregiszter (ECFS Patients Registry) mintegy 50 ezer eur\u00f3pai betegr\u0151l tartalmaz adatokat \u00e1llapotukkal illetve ter\u00e1pi\u00e1jukkal kapcsolatban. A programnak imm\u00e1ron t\u00f6bb mint t\u00edz \u00e9ve Magyarorsz\u00e1g is tagja, \u00edgy \u00f6r\u00f6mmel osztjuk meg az ECFS \u00e1ltal frissen publik\u00e1lt kiadv\u00e1nyt amely a 2020-as \u00e9v \u00f6sszes\u00edtett adatait tartalmazza pdf form\u00e1tumban.<\/p>\n\n\n\n<p>A <a href=\"https:\/\/www.ecfs.eu\/sites\/default\/files\/ECFSPR_Report_2020_v1.0%20%2807Jun2022%29_website.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">teljes dokumentum<\/a> a program honlapj\u00e1r\u00f3l (ECFSPR) el\u00e9rhet\u0151, valamint <a href=\"https:\/\/www.ecfs.eu\/ecfspr\" target=\"_blank\" rel=\"noreferrer noopener\">ugyanitt<\/a> grafikus webalkalmaz\u00e1s seg\u00edts\u00e9g\u00e9vel a kiv\u00e1lasztott orsz\u00e1gr\u00f3l kaphatunk r\u00e9szletesebb t\u00e1j\u00e9koztat\u00e1st is.<\/p>\n\n\n\n<p>Az eur\u00f3pai adatokat \u00f6sszes\u00edtve tartalmaz\u00f3 <a href=\"https:\/\/www.ecfs.eu\/sites\/default\/files\/ECFSPR_AtaGlance_2020_FINAL.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">infografik\u00e1kat<\/a> szint\u00e9n project honlapj\u00e1r\u00f3l lehet let\u00f6lteni.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><a href=\"https:\/\/www.ecfs.eu\/ecfspr\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"705\" src=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2022\/07\/ecfspr2020_1-1024x705.png\" alt=\"\" class=\"wp-image-2610\" srcset=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2022\/07\/ecfspr2020_1-1024x705.png 1024w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2022\/07\/ecfspr2020_1-300x207.png 300w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2022\/07\/ecfspr2020_1-768x529.png 768w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2022\/07\/ecfspr2020_1.png 1488w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/a><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>Az Eur\u00f3pai Ciszt\u00e1s Fibr\u00f3zis T\u00e1rsas\u00e1g (ECFS) \u00e1ltal gy\u0171jt\u00f6tt \u00e9s karbantartott \u00f6sszeur\u00f3pai cf betegregiszter (ECFS Patients Registry) mintegy 50 ezer eur\u00f3pai betegr\u0151l tartalmaz adatokat \u00e1llapotukkal illetve&#8230;<\/p>\n","protected":false},"author":1,"featured_media":2611,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[190,189],"class_list":["post-2609","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecfs-patients-registry","tag-ecfspr","entry","double"],"_links":{"self":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2609","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/comments?post=2609"}],"version-history":[{"count":3,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2609\/revisions"}],"predecessor-version":[{"id":2614,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2609\/revisions\/2614"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media\/2611"}],"wp:attachment":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media?parent=2609"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/categories?post=2609"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/tags?post=2609"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}