{"id":2393,"date":"2021-03-02T20:59:29","date_gmt":"2021-03-02T19:59:29","guid":{"rendered":"https:\/\/www.cisztasfibrozis.hu\/?p=2393"},"modified":"2021-03-02T21:26:01","modified_gmt":"2021-03-02T20:26:01","slug":"megkezdodott-az-orkambi-terapia-mindharom-hazai-cf-centrumban","status":"publish","type":"post","link":"https:\/\/www.cisztasfibrozis.hu\/index.php\/2021\/03\/02\/megkezdodott-az-orkambi-terapia-mindharom-hazai-cf-centrumban\/","title":{"rendered":"Megkezd\u0151d\u00f6tt az Orkambi ter\u00e1pia mindh\u00e1rom hazai CF centrumban"},"content":{"rendered":"\n<p>A <a href=\"http:\/\/heimpalkorhaz.hu\/\" target=\"_blank\" rel=\"noopener\">Heim P\u00e1l Orsz\u00e1gos Gyermekgy\u00f3gy\u00e1szati Int\u00e9zetben<\/a> illetve az <a href=\"https:\/\/www.koranyi.hu\/\" target=\"_blank\" rel=\"noopener\">Orsz\u00e1gos Kor\u00e1nyi Pulmonol\u00f3giai Int\u00e9zetben<\/a> is megkezd\u0151d\u00f6tt a CFTR modul\u00e1tor ter\u00e1pi\u00e1k alkalmaz\u00e1sa az els\u0151 betegeken. Az Orkambi nev\u0171 gy\u00f3gyszer janu\u00e1rt\u00f3l el\u00e9rhet\u0151 a hazai betegek sz\u00e1m\u00e1ra <a href=\"http:\/\/www.neak.gov.hu\/felso_menu\/lakossagnak\/ellatas_magyarorszagon\/gyogyszer_segedeszkoz_gyogyfuro_tamogatas\/egyedi_tamogatas\/egyedi_tamogatas.html#Magyarorsz%C3%A1gon%20forgalombahozatali%20enged%C3%A9llyel%20rendelkez%C5%91,%20de%20nem%20t%C3%A1mogatott%20gy%C3%B3gyszerek%20%C3%A1r%C3%A1ra%20vonatkoz%C3%B3%20m%C3%A9lt%C3%A1nyoss%C3%A1gi%20k%C3%A9relem\" target=\"_blank\" rel=\"noopener\">egyedi m\u00e9lt\u00e1nyoss\u00e1gi finansz\u00edroz\u00e1s keret\u00e9ben<\/a>. A CFTR modul\u00e1tor ter\u00e1pi\u00e1k a k\u00f6vetkez\u0151 m\u00e9rf\u00f6ldk\u00f6vet jelentik a ciszt\u00e1s fibr\u00f3zis ter\u00e1pi\u00e1j\u00e1nak lehet\u0151s\u00e9geiben, amelyr\u0151l <em><strong>Prof. Dr. Horv\u00e1th Ildik\u00f3<\/strong><\/em> eg\u00e9szs\u00e9g\u00fcgy\u00e9rt felel\u0151s \u00e1llamtitk\u00e1r is eml\u00edt\u00e9st tett <a href=\"https:\/\/www.delmagyar.hu\/kozelet\/helyi-kozelet\/tovabbfejlodott-a-ritka-betegsegek-kezelese-7282387\/\" target=\"_blank\" rel=\"noopener\">legut\u00f3bbi megsz\u00f3lal\u00e1s\u00e1ban a ritka betegs\u00e9gek kapcs\u00e1n.<\/a> <\/p>\n\n\n\n<p>Az al\u00e1bbi k\u00e9pek a k\u00e9t int\u00e9zetben k\u00e9sz\u00fcltek a ter\u00e1pi\u00e1ban r\u00e9szes\u00fcl\u0151 els\u0151 beteg csoportr\u00f3l valamint az eml\u00edtett int\u00e9zm\u00e9nyekben a CF ell\u00e1t\u00e1sban \u00e9s a gy\u00f3gyszer bevezet\u00e9s\u00e9ben r\u00e9sztvev\u0151 szakemberekkel.<br>K\u00f6sz\u00f6net illet mindenkit, aki r\u00e9szt vett a hazai bevezet\u00e9s el\u0151k\u00e9sz\u00edt\u00e9s\u00e9ben \u00e9s term\u00e9szetesen annak folyamatos lehet\u0151v\u00e9 t\u00e9tel\u00e9ben is.<\/p>\n\n\n\n<p class=\"has-regular-font-size\">(Az <a href=\"https:\/\/www.cisztasfibrozis.hu\/index.php\/2021\/02\/18\/elso-beteg-cftr-orkambi\/\">els\u0151 magyar betegr\u0151l<\/a> a <a href=\"http:\/\/torokbalintkorhaz.hu\/\" target=\"_blank\" rel=\"noopener\">T\u00f6r\u00f6kb\u00e1linti T\u00fcd\u0151gy\u00f3gyint\u00e9zetb\u0151l<\/a>, m\u00e1r \u00edrtunk kor\u00e1bban)<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_hp1-1-1024x768.jpg\" alt=\"\" class=\"wp-image-2396\" srcset=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_hp1-1-1024x768.jpg 1024w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_hp1-1-300x225.jpg 300w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_hp1-1-768x576.jpg 768w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_hp1-1-1536x1152.jpg 1536w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_hp1-1.jpg 1600w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><figcaption>Az Orkambi alkalmaz\u00e1sa a Heim P\u00e1l Orsz\u00e1gos Gyermekgy\u00f3gy\u00e1szati Int\u00e9zetben<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"960\" height=\"720\" src=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_korany2.jpg\" alt=\"Orkambi alkalmaz\u00e1sa a Kor\u00e1nyiban 1\" class=\"wp-image-2399\" srcset=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_korany2.jpg 960w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_korany2-300x225.jpg 300w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_korany2-768x576.jpg 768w\" sizes=\"auto, (max-width: 960px) 100vw, 960px\" \/><figcaption>Az Orkambi alkalmaz\u00e1sa az Orsz\u00e1gos Kor\u00e1nyi Pulmonol\u00f3giai Int\u00e9zetben<\/figcaption><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_korany1-1024x768.jpg\" alt=\"Orkambi alkalmaz\u00e1sa a Kor\u00e1nyiban 2\" class=\"wp-image-2398\" srcset=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_korany1-1024x768.jpg 1024w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_korany1-300x225.jpg 300w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_korany1-768x576.jpg 768w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2021\/03\/orkambi_korany1.jpg 1440w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><figcaption>Az els\u0151 feln\u0151tt betegek \u00e9s az ell\u00e1t\u00e1sukat v\u00e9gz\u0151 szakemberek<\/figcaption><\/figure>\n\n\n\n<p><br>Az <a href=\"https:\/\/www.cisztasfibrozis.hu\/index.php\/2021\/02\/18\/elso-beteg-cftr-orkambi\/\">els\u0151 magyar betegr\u0151l<\/a> a <a href=\"http:\/\/torokbalintkorhaz.hu\/\" target=\"_blank\" rel=\"noopener\">T\u00f6r\u00f6kb\u00e1linti T\u00fcd\u0151gy\u00f3gyint\u00e9zetb\u0151l<\/a>, m\u00e1r \u00edrtunk kor\u00e1bban.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>A Heim P\u00e1l Orsz\u00e1gos Gyermekgy\u00f3gy\u00e1szati Int\u00e9zetben illetve az Orsz\u00e1gos Kor\u00e1nyi Pulmonol\u00f3giai Int\u00e9zetben is megkezd\u0151d\u00f6tt a CFTR modul\u00e1tor ter\u00e1pi\u00e1k alkalmaz\u00e1sa az els\u0151 betegeken. Az Orkambi nev\u0171&#8230;<\/p>\n","protected":false},"author":1,"featured_media":2395,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[],"class_list":["post-2393","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","entry","double"],"_links":{"self":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2393","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/comments?post=2393"}],"version-history":[{"count":10,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2393\/revisions"}],"predecessor-version":[{"id":2410,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/posts\/2393\/revisions\/2410"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media\/2395"}],"wp:attachment":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media?parent=2393"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/categories?post=2393"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/tags?post=2393"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}