{"id":55,"date":"2017-11-05T15:11:35","date_gmt":"2017-11-05T14:11:35","guid":{"rendered":"http:\/\/test.cisztasfibrozis.hu\/?page_id=55"},"modified":"2020-04-23T13:54:46","modified_gmt":"2020-04-23T11:54:46","slug":"az-alapitok","status":"publish","type":"page","link":"https:\/\/www.cisztasfibrozis.hu\/index.php\/az-alapitok\/","title":{"rendered":"Az alap\u00edt\u00f3k (1991)"},"content":{"rendered":"\n<h3 class=\"wp-block-heading\">A&nbsp;Feln\u0151tt Ciszt\u00e1s Fibr\u00f3zisos Betegek Egyes\u00fclete (FCFBE) 1991-ben alakult, az al\u00e1bbi betegt\u00e1rsaink \u00e9s seg\u00edt\u0151ik kezdem\u00e9nyez\u00e9se \u00e1ltal:<br> Az Egyes\u00fclet 2018 \u00e1prilis\u00e1ban a <strong>Ciszt\u00e1s Fibr\u00f3zis Betegek Egyes\u00fclete (CFBE)<\/strong> nevet vette fel, hogy kifejezze az \u00e9vek sor\u00e1n kiterjesztett elk\u00f6telezetts\u00e9g\u00e9t minden magyar CF-es beteg \u00e9rdekk\u00e9pviselete ir\u00e1nt.<br>Alap\u00edt\u00f3k:<\/h3>\n\n\n\n<p>Dr. Csisz\u00e9r Eszter<\/p>\n\n\n\n<p>F\u00e1bi\u00e1n Tam\u00e1s<\/p>\n\n\n\n<p>Garda P\u00e9ter<\/p>\n\n\n\n<p>Greksa Csaba<\/p>\n\n\n\n<p>K\u00e1r\u00e1sz Bernadett<\/p>\n\n\n\n<p>N\u00e9meth Lajos G\u00e1bor<\/p>\n\n\n\n<p>Varga \u00c1rp\u00e1d<\/p>\n\n\n\n<p>Varj\u00fa D\u00f3ra<\/p>\n\n\n\n<p>Szebell\u00e9di Andrea<\/p>\n\n\n\n<p>Az alap\u00edt\u00f3k az Egyes\u00fclet c\u00e9lkit\u0171z\u00e9seit 1991-ben az al\u00e1bbi szavakkal hat\u00e1rozt\u00e1k meg:<\/p>\n\n\n\n<div class=\"wp-block-image is-style-default\"><figure class=\"alignright size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2019\/09\/Beolvasott_20190910-2-642x1024.jpg\" alt=\"Alap\u00edt\u00f3k \u00e1ltal kiadott els\u0151 alapszab\u00e1ly\" class=\"wp-image-913\" width=\"191\" height=\"305\" srcset=\"https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2019\/09\/Beolvasott_20190910-2-642x1024.jpg 642w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2019\/09\/Beolvasott_20190910-2-188x300.jpg 188w, https:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2019\/09\/Beolvasott_20190910-2.jpg 740w\" sizes=\"auto, (max-width: 191px) 100vw, 191px\" \/><figcaption>Az alap\u00edt\u00f3k \u00e1ltal k\u00e9sz\u00fclt alapszab\u00e1ly fed\u0151lapja.<\/figcaption><\/figure><\/div>\n\n\n\n<p><em>\u201c1991-ben megalakult a Feln\u00f4tt CF Betegek Egye\u00fclete. L\u00e9tre- hoz\u00e1s\u00e1nak c\u00e9lkit\u00fbz\u00e9sei k\u00f6z\u00f6tt szerepel a kapcsolatteremt\u00e9s, az \u00e9rdekk\u00e9pviselet \u00e9s nem utols\u00f3 sorban az, hogy az orsz\u00e1g \u00f6sszes cisztikus fibr\u00f3zisos (mucovis- cid\u00f3sisos) beteg\u00e9hez meg- pr\u00f3b\u00e1ljuk eljuttatni mindazon in- form\u00e1ci\u00f3kat amelyekkel el\u00f4se- g\u00edthetj\u00fck a hasonl\u00f3 szint\u00fc eg\u00e9sz- s\u00e9g\u00fcgyi \u00e9s szoci\u00e1lis ell\u00e1t\u00e1st.\u201d<\/em><\/p>\n\n\n\n<p>Az Egyes\u00fclet egy rendszeresen megjelen\u0151 kiadv\u00e1nnyal is b\u00fcszk\u00e9lkedhetett egykoron, amelynek digit\u00e1lisan arhiv\u00e1lt form\u00e1ban az al\u00e1bbiakban tett\u00fcnk el\u00e9rhet\u0151v\u00e9 pdf form\u00e1tumban a <a href=\"http:\/\/www.cisztasfibrozis.hu\/index.php\/kiadvanyok\/\">let\u00f6lt\u00e9sek<\/a> men\u00fcpontban!<\/p>\n\n\n\n<p><a href=\"http:\/\/mindigcsakelore.blogspot.com\/2016\/09\/fcfbe-unnepseg-program.html\" class=\"rank-math-link\" target=\"_blank\" rel=\"noopener\">25.\u00e9vi jubilemi \u00fcnnep programja<\/a><\/p>\n\n\n\n<p><\/p>\n\n\n\n<p class=\"has-background has-very-light-gray-background-color\"><a href=\"http:\/\/www.cisztasfibrozis.hu\" class=\"rank-math-link\">Vissza a f\u0151oldalra<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>A&nbsp;Feln\u0151tt Ciszt\u00e1s Fibr\u00f3zisos Betegek Egyes\u00fclete (FCFBE) 1991-ben alakult, az al\u00e1bbi betegt\u00e1rsaink \u00e9s seg\u00edt\u0151ik kezdem\u00e9nyez\u00e9se \u00e1ltal: Az Egyes\u00fclet 2018 \u00e1prilis\u00e1ban a Ciszt\u00e1s Fibr\u00f3zis Betegek Egyes\u00fclete (CFBE)&#8230;<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-55","page","type-page","status-publish","hentry","entry","double"],"_links":{"self":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/pages\/55","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/comments?post=55"}],"version-history":[{"count":4,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/pages\/55\/revisions"}],"predecessor-version":[{"id":2088,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/pages\/55\/revisions\/2088"}],"wp:attachment":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media?parent=55"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}