{"id":196,"date":"2017-12-19T22:16:02","date_gmt":"2017-12-19T21:16:02","guid":{"rendered":"http:\/\/www.cisztasfibrozis.hu\/?page_id=196"},"modified":"2020-04-23T14:11:41","modified_gmt":"2020-04-23T12:11:41","slug":"ecfspr2015_hu","status":"publish","type":"page","link":"https:\/\/www.cisztasfibrozis.hu\/index.php\/ecfspr2015_hu\/","title":{"rendered":"ECFSPR &#8211; \u00d6sszefoglal\u00f3 jelent\u00e9s 2015"},"content":{"rendered":"\n<h4 class=\"wp-block-heading\">Az Eur\u00f3pai CF T\u00e1rsas\u00e1g (ECFS) \u00e1tlal minden \u00e9vben publik\u00e1lt, az <a href=\"https:\/\/www.ecfs.eu\/projects\/ecfs-patient-registry\/annual-reports\" target=\"_blank\" rel=\"noopener\">Eur\u00f3pai CF Regiszter adatait tartalmaz\u00f3 jelent\u00e9sek<\/a> mellett illetve ehhez a kiadv\u00e1nyhoz kapcsol\u00f3d\u00f3an, megjelentet \u00d6sszefoglal\u00f3 jelent\u00e9s n\u00e9ven egy magyar\u00e1z\u00f3 sz\u00f6vegekkel kieg\u00e9sz\u00edtett \u00e9s a legfontosabb adatokat tartalmaz\u00f3 posztert is. A kiadv\u00e1ny az CF Europe szervezet seg\u00edts\u00e9g\u00e9vel k\u00e9sz\u00fcl el \u00e9s az ECFSPR projectben r\u00e9szt vev\u0151 orsz\u00e1gok t\u00f6bbs\u00e9g\u00e9nek saj\u00e1t nyelv\u00e9re is leford\u00edtj\u00e1k, hogy a betegek illetve hozz\u00e1tartoz\u00f3k min\u00e9l sz\u00e9lesebb k\u00f6re \u00e1ltal legyen el\u00e9rhet\u0151.<\/h4>\n\n\n\n<p><strong>K\u00f6sz\u00f6nj\u00fck minden hozz\u00e1j\u00e1rul\u00f3nak a munk\u00e1j\u00e1t amely r\u00e9v\u00e9n ez a kiadv\u00e1ny megjelenhetetett!<\/strong><\/p>\n\n\n\n<p>A kiadv\u00e1ny let\u00f6lthet\u0151 pdf form\u00e1tumban el\u00e9rhet\u0151&nbsp;<a href=\"http:\/\/www.cisztasfibrozis.hu\/wp-content\/files\/documents\/etc\/\/ECFSPR_HU.pdf\">innen<\/a><\/p>\n\n\n\n<div class=\"wp-block-image is-style-default\"><figure class=\"aligncenter\"><img decoding=\"async\" src=\"http:\/\/www.cisztasfibrozis.hu\/wp-content\/uploads\/2017\/12\/ECFSPR_HU.png\" alt=\"ECFSPR\" class=\"wp-image-197\"\/><\/figure><\/div>\n\n\n\n<figure class=\"wp-block-embed-wordpress wp-block-embed is-type-wp-embed is-provider-cisztas-fibrozis-betegek-egyesulete\"><div class=\"wp-block-embed__wrapper\">\n<blockquote class=\"wp-embedded-content\" data-secret=\"lObNQ8LJh2\"><a href=\"https:\/\/www.cisztasfibrozis.hu\/index.php\/magyar-cf-regiszter\/\">A Magyar Ciszt\u00e1s Fibr\u00f3zis regiszter<\/a><\/blockquote><iframe loading=\"lazy\" class=\"wp-embedded-content\" sandbox=\"allow-scripts\" security=\"restricted\" style=\"position: absolute; clip: rect(1px, 1px, 1px, 1px);\" title=\"&#8220;A Magyar Ciszt\u00e1s Fibr\u00f3zis regiszter&#8221; &#8212; Ciszt\u00e1s Fibr\u00f3zis Betegek Egyes\u00fclete\" src=\"https:\/\/www.cisztasfibrozis.hu\/index.php\/magyar-cf-regiszter\/embed\/#?secret=Le4q8tEoD9#?secret=lObNQ8LJh2\" data-secret=\"lObNQ8LJh2\" width=\"500\" height=\"282\" frameborder=\"0\" marginwidth=\"0\" marginheight=\"0\" scrolling=\"no\"><\/iframe>\n<\/div><\/figure>\n\n\n\n<p class=\"has-background has-very-light-gray-background-color\"><a href=\"http:\/\/www.cisztasfibrozis.hu\">Vissza a f\u0151oldalra<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Az Eur\u00f3pai CF T\u00e1rsas\u00e1g (ECFS) \u00e1tlal minden \u00e9vben publik\u00e1lt, az Eur\u00f3pai CF Regiszter adatait tartalmaz\u00f3 jelent\u00e9sek mellett illetve ehhez a kiadv\u00e1nyhoz kapcsol\u00f3d\u00f3an, megjelentet \u00d6sszefoglal\u00f3 jelent\u00e9s&#8230;<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-196","page","type-page","status-publish","hentry","entry","double"],"_links":{"self":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/pages\/196","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/comments?post=196"}],"version-history":[{"count":2,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/pages\/196\/revisions"}],"predecessor-version":[{"id":2094,"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/pages\/196\/revisions\/2094"}],"wp:attachment":[{"href":"https:\/\/www.cisztasfibrozis.hu\/index.php\/wp-json\/wp\/v2\/media?parent=196"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}